Well, it's been an interesting three weeks or so. I'll do a brief recap:
After my chemo debacle (when I had the allergic reaction) I saw Dr. McCourt three days later. She took one look at me and asked me if I should be admitted to the hospital...I said "yes, please." I had packed a bag just in case.
I was admitted to the hospital for dehydration, blocked small bowel and just being SICK! They admitted me and hooked me up to fluids which helped me feel good...they also gave me morphine which made me feel really good and knocked me out.
My first hurdle was when they put a NG tube down into my stomach. Not the most pleasant procedure to undergo as anyone who has had this can attest. I agreed to it because they thought it would decompress my abdomen which was blown way up, filled with gas. I had that damned tube in me for almost a week, with little results.
They had to start me on artificial nutrition (TPN) which they run into me through my chest port. That helped perk me up, but....
The abdomen stayed distended throughout my hospital stay, nothing made it diminish. I had to start taking morphine again for pain in my abdomen and pain in my left lower back...which we finally figured out was happening because the TPN fluids were pooling in that area, under the skin. We didn't figure that out until I got home from the hospital.
I had one chemo treatment with Taxel while I was in the hospital...was scheduled for another one the following week, but my liver enzymes were too high to allow it. Very discouraging.
In the meantime, they took me to RI Hospital where they installed a G/J tube which was for drainage only. I have a tube that runs out of my left side and it's hooked to two bags...on to the Gastric tube, which drains fluids from my stomach and one to the J tube which drains stuff from my Jejunum. Actually last night we disconnected the J tube as it wasn't draining much any more. The whole thing is stinky, messy, sore and I can't wait to get rid of all of it. That will happen as I eat more and things don't get blocked.
After two weeks in the hospital where I did nothing much but sleep and hope for the best, I got home and then things started happening. I came home on Thursday, by Saturday morning my abdomen was decompressed.
The pain from the TPN excess fluid became too much on Monday and Sandy and I made the command decision to not give me the TPN every night...to give my body a chance to absorb the fluids. This system is working well. I get the TPN every other night...the pain stays manageable for the most part and I get my nutritional needs met.
I'm eating more and clamping the G tube shut while I do, so the food doesn't just run through the tube...it spends some time in my digestive system. So far, it's mostly liquid and semi liquid stuff like juices and puddings, yogurt etc...but the other day Sandy made me watery grits and scrambled eggs and it was delicious!
I went for chemo Thursday and now I have Sandra as my nurse. She and I shook on it and she did lots of things to assure me that she is no "June"....by the way, I filed a formal complaint against June when I was in the hospital. A Social Worker came to see me, asked about the "incident" and asked if I wanted to file a formal complaint and I said. "yes, yes I do." We'll see what comes of that.
Anyway, Sandra is excellent and she and Sandy bonded. That's good. The dietician came to consult with us and was a big help. I got the chemo....lots of positives happened Thursday.
Today I just feel low-grade yucky, probably from the chemo. I'll feel that way for a couple of days and then it will be time for another treatment next Thursday.
I may not have made much sense in this post, please excuse me...my brain is mush due to the morphine. I got a prescription for something else today, so I can stop taking morphine...it makes me too loopy. My goal is to be off pain meds by Christmas...I'm surprised I'm still taking them really, I'm usually off all pain stuff a day or so after I get out of the hospital. Slower this time....
I'm getting there...we have a plan that we are following to get rid of the tubes and one of them is already shut down. Then the G Tube and then get rid of the TPN. We have a plan...
Feel bad that I haven't done any shopping for Christmas, Sandy had to send out all the cards again this year and I can't really get into the holiday spirit. I'm not going to let it bother me too much though.
Going to see Maria and Phil this Sunday...that will be great. Steve calls me to check in...wonderful (when I hear the phone ringing that is) and I may go to Jean's sometime over the holiday (we'll see).
I'll be doing my holiday celebrations later....soon, I'm sure.
Later....
AND HAPPY HOLIDAYS TO ALL...whichever holiday you celebrate!
Friday, December 21, 2012
Monday, November 26, 2012
On returning to chemo???!!!
Long day that turned out to be one of the most challenging days yet. At one point I said to Jean's friend Dorothy, who accompanied us to chemo today, "and I used to think I had bad days at work?"
Started off with Sandy driving me to Backus this AM for my echocardiogram, which they couldn't do because they couldn't get in touch with my doctor over the holiday weekend....so we rescheduled for Friday.
Sandy came down to check on me, just as I was dragging my ass out of the Registration Area, and she took me to her office to sit and wait until Jean and Dorothy arrived to take me to Providence. I was so lethargic, sat in the corner of Sandy and Kate's office, half asleep, mouth hanging open, listening to those two babble to each other about their work tasks, fascinating....computer geeks.
Then Jean arrived and I climbed into the back seat and off to Providence we go. I was happy to doze in the back, Jean drives too fast and follows other vehicles too closely...it always makes me a nervous wreck to drive with her. She isn't getting any younger, surely she can't believe her reaction time is still that of an 18 year old?
When we first went upstairs I got the first inkling of trouble...they still didn't have all the blood test results in. I KNEW this would be a problem...Tracy in the Norwich Office hadn't marked the request STAT and hadn't included the fax number for W&I. I had already called her from Sandy's office, asking her to check on the blood work and get it faxed to them. Later I learn that they hadn't even started the Oncology Profile...the most important piece of information. I won't even get into the fact that I had a special tumor marker test drawn and it should never have been done at Backus, I should have had that done at W&I. Now I don't know if my insurance will pay to have it redone using W&I's standards!
Okay, so they take me in a little earlier than 11:30, which was when my appt was. As I'm walking down the hall, JUNE (WHO I WAS TOLD I WOULD NEVER HAVE TO HAVE AS MY CHEMO NURSE, EVER, EVER AGAIN) was telling me that Backus hadn't sent all the test results. I make ANOTHER call to Tracy and tell her to check and call me back....I don't want her calling the system up there, she could be lost for days. She calls and tells me Backus is on it. Later I hear that they still hadn't even started theD Oncology Profile.
Long story short, my chemo didn't start until after 3pm! By this time Jean and Dorothy had gone out to eat, gone on two walks and had just left to go back out to the waiting room when June came in to start my chemo. I think they skeedaddled because Jean heard me say I felt like I was going to puke....she can't stand that stuff.
I'm glad they weren't there to see what happened next....they would have been freaked out. June started the infusion and left the room. I was doing guided imagery, using my mother to get the chemo to the places where it would be the most effective, when suddenly, WHAM! I sat straight up and started coughing....then coughing some more....very loud and uncontrollable. I thought, What the Hell? I checked my hands to see if I had hives...I think I lifted my shirt and checked my abdomen, no hives...then I started with the tell-tale heat....so hot all over my body. Then I felt like there was a hand on my throat squeezing my airway very tightly. I looked around...no one in sight. So I just started yelling "HELP, SOMEBODY HELP ME PLEASE, HELP".....a visitor in the next cubicle peaked in and left...suddenly the nurses were there asking me questions I just said my chest, my chest, I'm so hot I have to take my clothes off...and I took my sweater off.
They stopped the chemo from flowing into me and someone brought the kit in and they gave me benadryl and something else I think. I could feel things clearing up but not as fast as I would have preferred.
June came in, looked at everyone standing around in my room and asked "what happened?" DUH!
One of the nurses, to her credit, asked June, "Where were you?" Another DUH....she was in the bathroom. DUH DUH DUH!
Oh and to add insult to injury, the Nurse Practitioner they sent in to "run the code" was that ASSHAT GRACE who I used to have issues with every time I saw her when I was in the hospital...the one who comes in the room lifts my shirt and starts examining me without once telling me her name, her role, anything. The one who insisted that I had to come back to the hospital two days after my last treatment in the hospital to get a drug I refused to take. And she tells me I CAN'T refuse it! I told her, "oh yes I can, I do anything I want. I have never taken that drug after a treatment and I am not taking it now!" When she left the room the nurse who was doing my chemo told me "good for you."
But I digress. In the middle of my anaphylactic reaction....because that's exactly what happened...I'm having my little breathing difficulty and here comes ASSHAT Grace....running in, holding my hand....UGH!
I was very angry and upset that I was having a reaction to Doxel...I had such high hopes for this drug to help me...and it has so few side effects every one told me. So, in the middle of this I'm banging on the arm of the chair, yelling DAMN DAMN DAMN!! And Grace takes my hand to comfort me....stupid! I'm pissed!
Where the hell was Little Ann Marie when I needed her?
Oh June seems to think she's going to be my nurse again....but I told her I wanted appointments on Thursday, because" it works best for me" She said, "oh, you want to go back to that Thursday thing?"
Tomorrow I call Ann Marie the Boss and tell her I need her to get me an appt with Dr. McCourt the sooner the better so we can figure out a new plan of attack. I'm going to tell her I don't want to ever see June again. She screwed up twice on me yesterday, once letting my IV fluid to run out (I texted Sandy and asked her if this is a problem and she said it could screw up my port) I had to ask another nurse to start a new bag of saline. But the big screw up came with her just starting me on new chemo, without telling me anything about the drug, any side effects to watch for, and walking away. She should have stayed with me for a few minutes anyway...the first few minutes are critical.
When the nurses responded, they asked me what happened...I told them June hooked me up and then within a minute I felt strange and within two minutes I was feeling like I was being choked. They know.
Then I left my iPhone in the back of Jean's car....figures.
The GOOD NEWS....I did get almost four bags of saline in me today while waiting for the blood tests to come through. That perked me up considerably. Also, the steroids they gave me for the reaction may have had a antiimflammatory effect on my guts. They seem to be a lot better too. SO THERE!
At first I said I wasn't going to get my mother involved in any more of the action, obviously she screwed up in the guided imagery thing...but then Sandy had the thought, maybe Mummy took action in her own heavy-handed way...putting the stop to this chemo right off the bat, instead of letting me go through a few treatments and then having the reaction. And maybe the treatment for the reaction will end up helping me where I need it most right now...my guts. I could see that...it certainly was more my mother's MO....nothing subtle there.
I'll just have to wait and see what is going to happen. Don't we all? Right now I'm happy to be in my warm bed, with my puppy stretched out under the covers beside me. Life is SWEET!
Later.....
Started off with Sandy driving me to Backus this AM for my echocardiogram, which they couldn't do because they couldn't get in touch with my doctor over the holiday weekend....so we rescheduled for Friday.
Sandy came down to check on me, just as I was dragging my ass out of the Registration Area, and she took me to her office to sit and wait until Jean and Dorothy arrived to take me to Providence. I was so lethargic, sat in the corner of Sandy and Kate's office, half asleep, mouth hanging open, listening to those two babble to each other about their work tasks, fascinating....computer geeks.
Then Jean arrived and I climbed into the back seat and off to Providence we go. I was happy to doze in the back, Jean drives too fast and follows other vehicles too closely...it always makes me a nervous wreck to drive with her. She isn't getting any younger, surely she can't believe her reaction time is still that of an 18 year old?
When we first went upstairs I got the first inkling of trouble...they still didn't have all the blood test results in. I KNEW this would be a problem...Tracy in the Norwich Office hadn't marked the request STAT and hadn't included the fax number for W&I. I had already called her from Sandy's office, asking her to check on the blood work and get it faxed to them. Later I learn that they hadn't even started the Oncology Profile...the most important piece of information. I won't even get into the fact that I had a special tumor marker test drawn and it should never have been done at Backus, I should have had that done at W&I. Now I don't know if my insurance will pay to have it redone using W&I's standards!
Okay, so they take me in a little earlier than 11:30, which was when my appt was. As I'm walking down the hall, JUNE (WHO I WAS TOLD I WOULD NEVER HAVE TO HAVE AS MY CHEMO NURSE, EVER, EVER AGAIN) was telling me that Backus hadn't sent all the test results. I make ANOTHER call to Tracy and tell her to check and call me back....I don't want her calling the system up there, she could be lost for days. She calls and tells me Backus is on it. Later I hear that they still hadn't even started theD Oncology Profile.
Long story short, my chemo didn't start until after 3pm! By this time Jean and Dorothy had gone out to eat, gone on two walks and had just left to go back out to the waiting room when June came in to start my chemo. I think they skeedaddled because Jean heard me say I felt like I was going to puke....she can't stand that stuff.
I'm glad they weren't there to see what happened next....they would have been freaked out. June started the infusion and left the room. I was doing guided imagery, using my mother to get the chemo to the places where it would be the most effective, when suddenly, WHAM! I sat straight up and started coughing....then coughing some more....very loud and uncontrollable. I thought, What the Hell? I checked my hands to see if I had hives...I think I lifted my shirt and checked my abdomen, no hives...then I started with the tell-tale heat....so hot all over my body. Then I felt like there was a hand on my throat squeezing my airway very tightly. I looked around...no one in sight. So I just started yelling "HELP, SOMEBODY HELP ME PLEASE, HELP".....a visitor in the next cubicle peaked in and left...suddenly the nurses were there asking me questions I just said my chest, my chest, I'm so hot I have to take my clothes off...and I took my sweater off.
They stopped the chemo from flowing into me and someone brought the kit in and they gave me benadryl and something else I think. I could feel things clearing up but not as fast as I would have preferred.
June came in, looked at everyone standing around in my room and asked "what happened?" DUH!
One of the nurses, to her credit, asked June, "Where were you?" Another DUH....she was in the bathroom. DUH DUH DUH!
Oh and to add insult to injury, the Nurse Practitioner they sent in to "run the code" was that ASSHAT GRACE who I used to have issues with every time I saw her when I was in the hospital...the one who comes in the room lifts my shirt and starts examining me without once telling me her name, her role, anything. The one who insisted that I had to come back to the hospital two days after my last treatment in the hospital to get a drug I refused to take. And she tells me I CAN'T refuse it! I told her, "oh yes I can, I do anything I want. I have never taken that drug after a treatment and I am not taking it now!" When she left the room the nurse who was doing my chemo told me "good for you."
But I digress. In the middle of my anaphylactic reaction....because that's exactly what happened...I'm having my little breathing difficulty and here comes ASSHAT Grace....running in, holding my hand....UGH!
I was very angry and upset that I was having a reaction to Doxel...I had such high hopes for this drug to help me...and it has so few side effects every one told me. So, in the middle of this I'm banging on the arm of the chair, yelling DAMN DAMN DAMN!! And Grace takes my hand to comfort me....stupid! I'm pissed!
Where the hell was Little Ann Marie when I needed her?
Oh June seems to think she's going to be my nurse again....but I told her I wanted appointments on Thursday, because" it works best for me" She said, "oh, you want to go back to that Thursday thing?"
Tomorrow I call Ann Marie the Boss and tell her I need her to get me an appt with Dr. McCourt the sooner the better so we can figure out a new plan of attack. I'm going to tell her I don't want to ever see June again. She screwed up twice on me yesterday, once letting my IV fluid to run out (I texted Sandy and asked her if this is a problem and she said it could screw up my port) I had to ask another nurse to start a new bag of saline. But the big screw up came with her just starting me on new chemo, without telling me anything about the drug, any side effects to watch for, and walking away. She should have stayed with me for a few minutes anyway...the first few minutes are critical.
When the nurses responded, they asked me what happened...I told them June hooked me up and then within a minute I felt strange and within two minutes I was feeling like I was being choked. They know.
Then I left my iPhone in the back of Jean's car....figures.
The GOOD NEWS....I did get almost four bags of saline in me today while waiting for the blood tests to come through. That perked me up considerably. Also, the steroids they gave me for the reaction may have had a antiimflammatory effect on my guts. They seem to be a lot better too. SO THERE!
At first I said I wasn't going to get my mother involved in any more of the action, obviously she screwed up in the guided imagery thing...but then Sandy had the thought, maybe Mummy took action in her own heavy-handed way...putting the stop to this chemo right off the bat, instead of letting me go through a few treatments and then having the reaction. And maybe the treatment for the reaction will end up helping me where I need it most right now...my guts. I could see that...it certainly was more my mother's MO....nothing subtle there.
I'll just have to wait and see what is going to happen. Don't we all? Right now I'm happy to be in my warm bed, with my puppy stretched out under the covers beside me. Life is SWEET!
Later.....
Friday, November 23, 2012
Back to Chemo
Well, it's been an interesting November, starting off with my trip to Maine with Joyce, to stay at the Meadowmere and to take a cooking class at Stonewall Kitchen, back on the first weekend of the month.
We did stay at the Meadowmere but we never made it to that cooking class. Instead Joyce had to drive me to the Urgent Care Ctr in Wells, where they did a CT scan, blood work and pee test and found out I had a UTI...and a small bowel obstruction! DOH!
I won't go into all the sordid details and all the weird things that happened that night, but suffice it to say, I was VERY happy to have Joyce with me....she being a nurse and being able and willing to advocate for me. I ended up taking a three hour ride in the back of an ambulance to Backus, as the surgeon on call at Maine Medical Ctr (which is where I wanted to go) kept pushing back on taking me. Sandy thinks it's because I am "complicated."
Anyway, back in Norwich I didn't care for the ambiance at the hospital (roommate who plays the TV 24-7 and spends the daylight hours on the phone whining about her pain level and how she needs more drugs) and the surgeon (who shall remain nameless) was a LITTLE TOO eager to operate on me...so I asked to be shipped to Women and Infants.
So another ambulance ride to Providence, with another great ambulance crew. The Maine guys were fun, the American Ambulance gals were also fun.
When I got to W&I everything calmed right down...including my guts. What professionals they have up there. I had my chemo nurse, "Little Anne Marie" as my night nurse and then my all-time favorite, Marcia as my first shift nurse! WOO HOO! They took good care of me and by noon I was farting and then VOILA....a BM! I was out of there around 7pm....and back home in time to vote the next day.
I saw Dr. D instead of Dr. McCourt on Wednesday for my routine follow-up. He told me what McCourt had told me when I was in the hospital, that the last CT scan showed that the cancer was growing in me. He presented me with the option of going on a clinical trial of a drug combined with a substance that stimulates the immune system to fight the cancer.
Sandy and I did NOT like this trial. It would involve me going to Providence six times a month, having chemo and then having to wait around for HOURS while they drew blood work at four, six and eight hour intervals after the infusion! No, I did not want to put my family, friends and myself through that ordeal....not in the dead of winter, driving on icy back roads, etc.
I admit that I sank into a dark hole after this. I was very weepy, and very down. Thankfully Sandy understands and put up with me when my depression came out as anger, with me snapping at everything she said.
The dark hole got darker last weekend when my stomach started acting up...not my small bowel, my stomach...which felt like I had a big fist in there every time I ate something. I had to soak in the bathtub in hot water three times during the night last Saturday, trying to ease the cramps and pains in my abdomen. Sunday I lay there in bed like a limp rag....and vowed to eat only liquids from now on. The next day things felt a bit better, so I dared to try cottage cheese...big mistake. Right back into the tub I went....weeping silently like an old fool.
I called Tracy at W&I's Norwich Office and she snuck me in to see Dr. McCourt before office hours Wednesday AM...which was timely since they were discussing my case at Tumor Review Board on Tuesday.
Sandy met me at the office and we went in to see the doc. She explained that the CT scan shows that the two lesions I have, one near my spleen and one near my liver, have grown....slightly. They are still only about an inch long apiece. There are also new "spots" showing up in my abdomen...not surprising given the little "pings of pain" I have been feeling off and on. She doesn't know how much more cancer is in there that isn't showing up on the CT scan, but my CA 125 is still over 300.
The good news! She recommends that I go on a treatment of Doyxl....not the clinical trial. I will start on Monday, will only have to go once a month, and will not need pre meds, so I can drive myself if I am up to it! WOO HOO! And the infusion won't take long at all, so it's a quick trip and I'm out of there! I am so happy about this....so much better than that onerous trial they were talking about.
Doxyl doesn't have many side effects.....mouth sores, a rash that you can get if you wear tight clothes (which I don't) and the skin on your hands can crack so I will need to keep them greased up with lotion. I won't lose my hair...which is too bad actually, I like being bald.
I still am reluctant to eat solids. I will stick to puree for a while...we'll see if the chemo "dries things out" in my abdomen, making it easier for me to digest things. I've lost a bit of weight...I now weigh what I weighed when I went in the Army, back in 1974! I don't look too good though...it would be better if I was thin AND looked good!
I didn't go to Sandy's folks for Thanksgiving...I couldn't eat the stuff and the smell of it would have made me sick. I did, however, puree leftover mashed potatoes, sweet potatoes and gravy and have that for supper last night...YUM! And, it went down just fine. Jean sent up enough leftovers to keep me going for awhile...she is so sweet.
So Monday AM I go for a cardiac ultrasound as part of my pretesting for chemo, then Jean and her friend Dorothy will give me a ride to Providence to start my new chemo adventure. Can't wait!
I don't want to just write about my crap...I also want to note how much I am enjoying the Huskies basketball teams...both of them. I was so sick of Calhoun and am loving Kevin Ollie all over again. I think he is the best thing that could have happened to this team. The women are going to win it all...no doubt in my mind and I am enjoying every second of the season.
AND....THE PATS!!!! I think the Pats can go all the way too...barring injuries. They are really clicking on defense now, to match their offense and I'm so happy!
Happy Thanksgiving ALL!
Later....
We did stay at the Meadowmere but we never made it to that cooking class. Instead Joyce had to drive me to the Urgent Care Ctr in Wells, where they did a CT scan, blood work and pee test and found out I had a UTI...and a small bowel obstruction! DOH!
I won't go into all the sordid details and all the weird things that happened that night, but suffice it to say, I was VERY happy to have Joyce with me....she being a nurse and being able and willing to advocate for me. I ended up taking a three hour ride in the back of an ambulance to Backus, as the surgeon on call at Maine Medical Ctr (which is where I wanted to go) kept pushing back on taking me. Sandy thinks it's because I am "complicated."
Anyway, back in Norwich I didn't care for the ambiance at the hospital (roommate who plays the TV 24-7 and spends the daylight hours on the phone whining about her pain level and how she needs more drugs) and the surgeon (who shall remain nameless) was a LITTLE TOO eager to operate on me...so I asked to be shipped to Women and Infants.
So another ambulance ride to Providence, with another great ambulance crew. The Maine guys were fun, the American Ambulance gals were also fun.
When I got to W&I everything calmed right down...including my guts. What professionals they have up there. I had my chemo nurse, "Little Anne Marie" as my night nurse and then my all-time favorite, Marcia as my first shift nurse! WOO HOO! They took good care of me and by noon I was farting and then VOILA....a BM! I was out of there around 7pm....and back home in time to vote the next day.
I saw Dr. D instead of Dr. McCourt on Wednesday for my routine follow-up. He told me what McCourt had told me when I was in the hospital, that the last CT scan showed that the cancer was growing in me. He presented me with the option of going on a clinical trial of a drug combined with a substance that stimulates the immune system to fight the cancer.
Sandy and I did NOT like this trial. It would involve me going to Providence six times a month, having chemo and then having to wait around for HOURS while they drew blood work at four, six and eight hour intervals after the infusion! No, I did not want to put my family, friends and myself through that ordeal....not in the dead of winter, driving on icy back roads, etc.
I admit that I sank into a dark hole after this. I was very weepy, and very down. Thankfully Sandy understands and put up with me when my depression came out as anger, with me snapping at everything she said.
The dark hole got darker last weekend when my stomach started acting up...not my small bowel, my stomach...which felt like I had a big fist in there every time I ate something. I had to soak in the bathtub in hot water three times during the night last Saturday, trying to ease the cramps and pains in my abdomen. Sunday I lay there in bed like a limp rag....and vowed to eat only liquids from now on. The next day things felt a bit better, so I dared to try cottage cheese...big mistake. Right back into the tub I went....weeping silently like an old fool.
I called Tracy at W&I's Norwich Office and she snuck me in to see Dr. McCourt before office hours Wednesday AM...which was timely since they were discussing my case at Tumor Review Board on Tuesday.
Sandy met me at the office and we went in to see the doc. She explained that the CT scan shows that the two lesions I have, one near my spleen and one near my liver, have grown....slightly. They are still only about an inch long apiece. There are also new "spots" showing up in my abdomen...not surprising given the little "pings of pain" I have been feeling off and on. She doesn't know how much more cancer is in there that isn't showing up on the CT scan, but my CA 125 is still over 300.
The good news! She recommends that I go on a treatment of Doyxl....not the clinical trial. I will start on Monday, will only have to go once a month, and will not need pre meds, so I can drive myself if I am up to it! WOO HOO! And the infusion won't take long at all, so it's a quick trip and I'm out of there! I am so happy about this....so much better than that onerous trial they were talking about.
Doxyl doesn't have many side effects.....mouth sores, a rash that you can get if you wear tight clothes (which I don't) and the skin on your hands can crack so I will need to keep them greased up with lotion. I won't lose my hair...which is too bad actually, I like being bald.
I still am reluctant to eat solids. I will stick to puree for a while...we'll see if the chemo "dries things out" in my abdomen, making it easier for me to digest things. I've lost a bit of weight...I now weigh what I weighed when I went in the Army, back in 1974! I don't look too good though...it would be better if I was thin AND looked good!
I didn't go to Sandy's folks for Thanksgiving...I couldn't eat the stuff and the smell of it would have made me sick. I did, however, puree leftover mashed potatoes, sweet potatoes and gravy and have that for supper last night...YUM! And, it went down just fine. Jean sent up enough leftovers to keep me going for awhile...she is so sweet.
So Monday AM I go for a cardiac ultrasound as part of my pretesting for chemo, then Jean and her friend Dorothy will give me a ride to Providence to start my new chemo adventure. Can't wait!
I don't want to just write about my crap...I also want to note how much I am enjoying the Huskies basketball teams...both of them. I was so sick of Calhoun and am loving Kevin Ollie all over again. I think he is the best thing that could have happened to this team. The women are going to win it all...no doubt in my mind and I am enjoying every second of the season.
AND....THE PATS!!!! I think the Pats can go all the way too...barring injuries. They are really clicking on defense now, to match their offense and I'm so happy!
Happy Thanksgiving ALL!
Later....
Monday, September 24, 2012
NOCC Run/Walk
Annie's Army: L-R Sharon, Steve, Pam, me, Patty, Carol, Todd, Sandy and Lindsay and all the doggies.
Janet and I put together the gift bags for the doggies registered for the Walk/Run...bags and cookies donated by Janet's friend, Gail.
I would load more pictures here if I could find the damned things. I just downloaded the pics and now I can't find all of them! So weird.
The NOCC event was a huge success for the organization, for our teammates and for me personally.
The organization held the biggest walk ever. Raised the most money ever. This is the third year for this event and it's growing nicely.
My team members did well...Steve was second male in his age group in the 5k Run...bettered his time from last year by two minutes! WOW!
Sandy and Rocket averaged a bit over nine minutes per mile in the run. Rocket really helped with this, pulling Sandy just about the whole way. He and she loved it...they had a great time!
Carol successfully completed her first-ever 5k, despite blisters and being sore from previous injuries. So proud of her!
The walkers on the team all finished the course, most of them had doggies that they walked with....and the pooches had a great time too!
There were over 160 dogs pre-registered...this is the first year we have allowed dogs in the run/race and it was much appreciated by people and a HUGE success!
Our team exceeded our $2000 goal and the money continues to come in. Next year we hope to add more team members (and doggies) and raise even more money.
The weather was wonderful, the food vendors were great and everyone really enjoyed themselves and left the event happy and satisfied.
It was a great time for me because I was able to make it through the whole day, even though I worked hard and long the day before on helping with set-up for the event. Last year at the walk I was totally out of it...I was soooooo tired and confused. This year was TOTALLY different...for the better! What a difference! YAY!
Now I'm looking forward to our trip to Acadia, we leave on Saturday. Poor Sandy, she's exhausted...and actually said she didn't want to go to Acadia...but I told her I would load up the RV and I could help with driving...contrary to what she thinks. She now feels better about it. We are going to have a good time, exploring the parts of the park we didn't get to see last year, poking around in the area. The dogs will love it and we will relax and enjoy ourselves. I hope the weather holds that's all.
This week before we go I'm going kayaking with Jessica on Wednesday. Probably the last time of the year...which is a shame as I have only gone out on the water one other time this year! Sandy has yet to get in the water. Maybe if we have Indian summer in October we can go. I hope to have Joyce over for lunch, maybe Thursday or Friday and show off the bathroom.
Joyce and I are starting to look forward to our trip to Stonewall Kitchen in November...we are going to take a cooking class up there...and spend the weekend in Ogunquit. Can't wait to take her to Billy's Chowder House. It's going to be a weekend of eating and playing...YAY!
Okay, signing off...things are great, I feel great and life is GREAT!
Later!
Wednesday, August 29, 2012
Taking Charge
So, by now, most of you know the good news: my CT scan showed that everything is "stable" and I opted to continue my "chemo vacation" with the blessing of my oncologist. Someone said, "oh, I'm so happy you are cancer-free." Nope, I'm not "cancer free"...I still have cancer, it's just staying stable...the lesions I have are the same size from CT scan to CT scan...and my "numbers" on my bloodwork are low.
I am taking matters into my own hands about my abdominal pain and am using a lot of homeopathic remedies to help it. I drink aloe juice now which really helps soothe everything and I swig the "gripe water" (ginger and fennel) which helps alot. I can go for longer periods now when my abdomen does not hurt...YAY! The Green Market has been a good resource for me...I go there at least twice a week now.
The pain in my side waxes and wanes...but never goes away. I go to the allergist tomorrow, finally and hope he has at least a partial answer to what the hell this is! Watch, it will all be GAS! I have been getting better in that department and we all know how much gas that can't come out can really hurt. Maybe I just have to fart for a day (and a half) and everything will be fine.
Anyhoo, as the chemo gets further and further in the rear view mirror, I feel better. I notice an increase in energy. I have been taking a remedy for that too and that helps big time! I have been able to do more around the house, go out more and last longer before the fatigue hits. And when the fatigue does hit, I recover faster. I just have to lie flat for a bit and I can get up and go again.
This weekend we are heading to New Hampshire and Maine. New Hampshire first for "Wag-it Games" a doggie camp where the dogs will be playing different games. We'll be taking the RV, of course and staying over Fri-Sun. Monday we move to Saco, where we will be staying at the KOA. Tuesday Sandy will be driving the car up to Augusta, to take Bubbles to see the vet up there. I'll stay back with Rocket and relax. Truman will go along for the ride to Augusta.
Rocky has an eye infection of unknown origin. Poor guy has to go back to the vets today because it isn't responding as well as we hoped. He has had to skip dock diving, going in the water treadmill at PT and his agility classes. He has been rather "reserved" also....quieter and more pathetic looking. I hope he feels good enough to enjoy his weekend of games!
The Seaside gang came over Monday night and we had a great time. I got to show them the bathroom and the RV and we had great food (which they brought) and caught up a bit on what is going on with us.
The weather has turned a bit in the direction I like to take...cool in the shade and warm in the sun. I've been harvesting my roma tomatoes and have frozen three batches thus far. Some kind of weird thing is hitting the "heritage" romas that we planted and I haven't been able to harvest too many usable ones. It's a shame because they are nice big romas.
We have enjoyed the "fruits of the garden" this summer...the squash, beans, corn and tomatoes. The egg plant are now coming in, but they are small. I dunno if they will get bigger...this is the first time we have planted them.
The corn stalks are HUGE. We'll let them dry and then bunch them around the arbor as a decoration...recycling them.
Oh, and I'm ALWAYS soliciting $$ and walkers/runners for my team "Annie's Army" for the Ovarian Cancer Coalition walk in September---the 22nd. If you can donate, volunteer (we need volunteers) or walk/run (and there are no "walk police"....if you sign up to walk/run and don't do it, no one will say a word!)....let me know. I'll be happy to help! My NOCC Home Page click on this to go to my page.
Okay, time to get back upstairs to finish the laundry.
Later....
I am taking matters into my own hands about my abdominal pain and am using a lot of homeopathic remedies to help it. I drink aloe juice now which really helps soothe everything and I swig the "gripe water" (ginger and fennel) which helps alot. I can go for longer periods now when my abdomen does not hurt...YAY! The Green Market has been a good resource for me...I go there at least twice a week now.
The pain in my side waxes and wanes...but never goes away. I go to the allergist tomorrow, finally and hope he has at least a partial answer to what the hell this is! Watch, it will all be GAS! I have been getting better in that department and we all know how much gas that can't come out can really hurt. Maybe I just have to fart for a day (and a half) and everything will be fine.
Anyhoo, as the chemo gets further and further in the rear view mirror, I feel better. I notice an increase in energy. I have been taking a remedy for that too and that helps big time! I have been able to do more around the house, go out more and last longer before the fatigue hits. And when the fatigue does hit, I recover faster. I just have to lie flat for a bit and I can get up and go again.
This weekend we are heading to New Hampshire and Maine. New Hampshire first for "Wag-it Games" a doggie camp where the dogs will be playing different games. We'll be taking the RV, of course and staying over Fri-Sun. Monday we move to Saco, where we will be staying at the KOA. Tuesday Sandy will be driving the car up to Augusta, to take Bubbles to see the vet up there. I'll stay back with Rocket and relax. Truman will go along for the ride to Augusta.
Rocky has an eye infection of unknown origin. Poor guy has to go back to the vets today because it isn't responding as well as we hoped. He has had to skip dock diving, going in the water treadmill at PT and his agility classes. He has been rather "reserved" also....quieter and more pathetic looking. I hope he feels good enough to enjoy his weekend of games!
The Seaside gang came over Monday night and we had a great time. I got to show them the bathroom and the RV and we had great food (which they brought) and caught up a bit on what is going on with us.
The weather has turned a bit in the direction I like to take...cool in the shade and warm in the sun. I've been harvesting my roma tomatoes and have frozen three batches thus far. Some kind of weird thing is hitting the "heritage" romas that we planted and I haven't been able to harvest too many usable ones. It's a shame because they are nice big romas.
We have enjoyed the "fruits of the garden" this summer...the squash, beans, corn and tomatoes. The egg plant are now coming in, but they are small. I dunno if they will get bigger...this is the first time we have planted them.
The corn stalks are HUGE. We'll let them dry and then bunch them around the arbor as a decoration...recycling them.
Oh, and I'm ALWAYS soliciting $$ and walkers/runners for my team "Annie's Army" for the Ovarian Cancer Coalition walk in September---the 22nd. If you can donate, volunteer (we need volunteers) or walk/run (and there are no "walk police"....if you sign up to walk/run and don't do it, no one will say a word!)....let me know. I'll be happy to help! My NOCC Home Page click on this to go to my page.
Okay, time to get back upstairs to finish the laundry.
Later....
Monday, August 6, 2012
"Quick" update. Work on the bathroom progresses...it seems like it's taking forever, but in reality it's "only been a month." Of course, I had totally unrealistic expectations of it taking two weeks. Cue loud, maniacal laughter....
We've been glued to the Olympics. Have enjoyed seeing the runners and the bball team (women). Sandy wants to run again...like she did in high school. She has been reading a lot about it and talking a lot about it, but I don't really see her running anywhere. I'm trying to encourage her to come to the gym with me, I need a gym buddy and maybe that will get her jump started.
She should go running with Rocky again. He loved it and she did too. I think I will push her to take him out some time this week.
I, of course, have no desire to run or do anything that involves sweating a lot. I would be happy to be able to get to the gym and workout again. I haven't been in some time due to the gut problems, first the runs and then the pains. Now it's the fatigue that keeps me from going.
Sandy got me some stuff called "Gripe Water"...it's for babies with colic, hiccups etc. I took the adult dose and it really helped with my abdominal pains! It's $10 a bottle and worth every penny! Can't believe that something so simple has helped so much....it's so nice to not walk around in pain all the time.
Where the hell did they get the name Gripe Water though? I don't get it. It's composed of ginger, fennel and bicarbonate of soda. Weird. I'm not griping about it, mind you, just find it curious.
Okay, signing off....USA USA USA!!!
Later....
We've been glued to the Olympics. Have enjoyed seeing the runners and the bball team (women). Sandy wants to run again...like she did in high school. She has been reading a lot about it and talking a lot about it, but I don't really see her running anywhere. I'm trying to encourage her to come to the gym with me, I need a gym buddy and maybe that will get her jump started.
She should go running with Rocky again. He loved it and she did too. I think I will push her to take him out some time this week.
I, of course, have no desire to run or do anything that involves sweating a lot. I would be happy to be able to get to the gym and workout again. I haven't been in some time due to the gut problems, first the runs and then the pains. Now it's the fatigue that keeps me from going.
Sandy got me some stuff called "Gripe Water"...it's for babies with colic, hiccups etc. I took the adult dose and it really helped with my abdominal pains! It's $10 a bottle and worth every penny! Can't believe that something so simple has helped so much....it's so nice to not walk around in pain all the time.
Where the hell did they get the name Gripe Water though? I don't get it. It's composed of ginger, fennel and bicarbonate of soda. Weird. I'm not griping about it, mind you, just find it curious.
Okay, signing off....USA USA USA!!!
Later....
Thursday, August 2, 2012
Half way there....
The bathroom is half done. The shower is tiled, the floor is tiled. The electrician is coming Saturday to install the new vanity light and prepare the area for the installation of the wiring and thermostat for the floor heat. The shower door guy came today to measure for the glass.
The shower door will be ready in "two weeks." I wanted to scream! Two weeks is the answer for everything!
I can't complain...Jim has been great, he's coming back on Monday to start prepping the walls for paint and to install the trim. Still have to finish the plumbing in the shower, install the toilet and install the vanity top and faucets.
I'm glad I didn't put the sealer on the vanity...just as I suspected, some damage was done during the work on the bathroom. I'll wait until the old top is removed and the new one installed before I do the touch-up and the sealing.
I was kidding when the work started in the second week of July that I wanted it done "by the end of August"....now that doesn't look like a joke anymore!
Today I ran out of steam....I had NO ENERGY....the shower door guy was coming over in a few minutes and I felt absolutely drained! It took all my will to get up from the chair, get the dogs in their kennels and greet Kirk at the door. I have no idea how I got him upstairs and then back out the door again. I guess the 5 hour energy drink I had knocked back just before he arrived must have kicked in. It was truly scary.
Sandy thinks I am deficient in manganese or magnesium or something....it has happened several times before when I was getting chemo and they would have to give it to me via IV. She is searching for a topical version of it for me as she thinks it will make me sick if I take it orally. What would I do without her?
When I saw my therapist yesterday I told her, "I'm a woman of above-average intelligence (verified by testing...don't take my word for it), who is has great support...from people with medical backgrounds, I have fantastic insurance and I struggle to get a proper diagnosis, proper and adequate treatment and I have to do a lot of work on my own to insure that my doctor's are properly informed regarding actions that other doctors are taking with me, etc. HOW THE FUCK do people with less resources do it? I know the answer, they don't....and they suffer and die. It's unbelievable in this day and age that this goes on....but it does, every friggin' day.
Enough of that....tomorrow we are hopefully, off to the beach for the first time this year! Carol is coming with and we plan to boogy board...I already have them out and stacked up in the garage, ready to load into the car. I can't wait! I hope I have the energy to do it.
Saturday we are going to Hebron Fairgrounds for another Jack Russell Fun Day...the dogs will get to do their favorite activities and then Sandy and I will hit Harry's on the way home. We went the other night after the dogs PT appointments and they were CLOSED! I was crushed! Charmine said they closed for a staff party....so they should be open on Saturday.
Be careful out there...the air is bad. Pace yourselves!
Later!
The shower door will be ready in "two weeks." I wanted to scream! Two weeks is the answer for everything!
I can't complain...Jim has been great, he's coming back on Monday to start prepping the walls for paint and to install the trim. Still have to finish the plumbing in the shower, install the toilet and install the vanity top and faucets.
I'm glad I didn't put the sealer on the vanity...just as I suspected, some damage was done during the work on the bathroom. I'll wait until the old top is removed and the new one installed before I do the touch-up and the sealing.
I was kidding when the work started in the second week of July that I wanted it done "by the end of August"....now that doesn't look like a joke anymore!
Today I ran out of steam....I had NO ENERGY....the shower door guy was coming over in a few minutes and I felt absolutely drained! It took all my will to get up from the chair, get the dogs in their kennels and greet Kirk at the door. I have no idea how I got him upstairs and then back out the door again. I guess the 5 hour energy drink I had knocked back just before he arrived must have kicked in. It was truly scary.
Sandy thinks I am deficient in manganese or magnesium or something....it has happened several times before when I was getting chemo and they would have to give it to me via IV. She is searching for a topical version of it for me as she thinks it will make me sick if I take it orally. What would I do without her?
When I saw my therapist yesterday I told her, "I'm a woman of above-average intelligence (verified by testing...don't take my word for it), who is has great support...from people with medical backgrounds, I have fantastic insurance and I struggle to get a proper diagnosis, proper and adequate treatment and I have to do a lot of work on my own to insure that my doctor's are properly informed regarding actions that other doctors are taking with me, etc. HOW THE FUCK do people with less resources do it? I know the answer, they don't....and they suffer and die. It's unbelievable in this day and age that this goes on....but it does, every friggin' day.
Enough of that....tomorrow we are hopefully, off to the beach for the first time this year! Carol is coming with and we plan to boogy board...I already have them out and stacked up in the garage, ready to load into the car. I can't wait! I hope I have the energy to do it.
Saturday we are going to Hebron Fairgrounds for another Jack Russell Fun Day...the dogs will get to do their favorite activities and then Sandy and I will hit Harry's on the way home. We went the other night after the dogs PT appointments and they were CLOSED! I was crushed! Charmine said they closed for a staff party....so they should be open on Saturday.
Be careful out there...the air is bad. Pace yourselves!
Later!
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